RALEIGH, N.C. (WNCT) – North Carolina lawmakers sent a bill to the governor’s desk for final approval that would add Severe Combined Immunodeficiency Disorder (SCID) screenings to the North Carolina newborn screening panel.
SCID impacts about one out of every 100,000 babies in the country.
The bill is named after Carlie Nugent, who was diagnosed with SCID at five months old, and died at seven months old.
Tiffany Gladney with the NC March of Dimes said SCID can be treated much more effectively if caught early. Adding it to the newborn screenings will hopefully save more lives.
She said they have been pushing for the bill to be passed in the state for years.
“We’re absolutely behind the 8 ball with this,” Gladney said. “But then at the same time there are only 26 states currently that require SCID screenings, but it’s definitely on the radar.”
SCID impacts the baby’s immune system, making them susceptible to even the most common viruses and illnesses.
The bill had a personal meaning for Rep. Charles Jeter (R- Mecklenberg Co.), one of the bill’s sponsors.
“As someone born with a birth defect in the 1970’s, there were few options for consultation and my parents chose the March of Dimes concerning my treatment. Make no mistake; had the March of Dimes not been so instrumental in our lives, I wouldn’t sit in the North Carolina House of Representatives today,” Jeter said. “I am honored to be one of the primary sponsors of HB 698.”